So far I have no more energy than when I first started and has developed neuropathy which I have just found out from Web MD that this neuropathy is one of the side effects of this med! Saying that by stopping this it would take another 6 months to build up the benefit. There are other meds that can help with what you are experiencing, and if your doctor didn't address that then I would seek out a second opinion... Please don't stop your plaquenil until you are sure it is the right thing to do and in your best interest. Plaquenil insert Plaquenil for seronegative arthropathy Does plaquenil increase fertility Chloroquine us brand name So after three weeks of taking Plaquenil hydroxychloroquine I developed a rash and had to stop. Now I'm really worried since Plaquenil is supposed to be the 'life insurance' drug of lupus, people have less flares on it, live longer, etc. Does this mean I have to be on steroids, and/or stronger drugs like Imuran and Cellcept, forever? Plaquenil is generally well-tolerated, but side effects are possible. Common side effects linked to Plaquenil include nausea and diarrhea. Taking the medication with food eases nausea for most people taking the drug. Less common side effects include skin rashes, hair thinning, and weakness. If you really need to get off it, I would taper down slowly, very slowly. There is a similar posting on Healthunlocked, "Why oh why did u stop taking plaquenil." You may want to check it out. I do go for intense eye examinations every 6 months to see if there is a difference in my eyesight from my base examine. I do have SJS also. Plaquenil is a 6-weeker as far as the benefits are concerned, but it would be more dangerous to stop if you spend a lot of time outside and if this were the summer. Or maybe another doctor if you're not comfortable w/your current one. Running fevers since going off plaquenil Coming Off Plaquenil questions - Sclero Forums MAIN - Sclero Forums, Taking Plaquenil for Rheumatoid Arthritis How to taper off of plaquenilHydroxychloroquine birth defects I recently decided to stop taking Plaquenil because I was having constant chest pains even more so than I usually have due to Lupus. Since I have not taken it my chest feels so much better which is odd because chest pain is not listed as a side effect. Also I noticed that the Plaquenil I think was making me feel different but not in a good way. Had to stop taking Plaquenil -. Hydroxychloroquine plaquenil withdrawl? - LUPUS UK. Stopping plaquenil. DailyStrength. Welcome to Sclero Forums! It is delightful to have you join us. I think your experience with going off plaquenil is very helpful for the rest of us to know about. You can let go of being angry at yourself, if you want. You didn't know for sure, ahead of time, that your health would worsen when you went off of plaquenil, did you? Does anyone know if you have to be weaned off Plaquenil? I've been on it for 15 years, for Lupus? Asked by Lupie523 Updated 27 September 2018 Topics plaquenil, lupus erythematosus, insomnia, sjogren's syndrome, systemic lupus erythematosus, vision Withdrawal syndrome is found among people who take Plaquenil, especially for people who are female, 50-59 old also take medication Lyrica, and have Fibromyalgia. This study is created by eHealthMe based on reports of 48,911 people who have side effects when taking Plaquenil from Food and Drug Administration FDA, and is updated regularly.